A new study from Memorial Sloan Kettering Cancer Center highlights the promise of ulixertinib, a targeted therapy drug that blocks ERK, for treating certain forms of histiocytosis, including Erdheim-Chester Disease (ECD). Led by Dr. Eli Diamond, a member of the ECDGA...
Participating in the ECDGA’s annual Run, Walk & Roll for Hope is powerful on its own—but forming a team can take your involvement to an entirely new level. Whether you’re rallying coworkers, uniting family members, or gathering a group of friends, creating a team...
The 2025 Run, Walk & Roll for Hope brings together supporters from all corners of the globe in the fight to raise awareness for Erdheim-Chester Disease (ECD). For those participating virtually, your impact is just as powerful—and with a little creativity and...
Each year, the Erdheim-Chester Disease Global Alliance (ECDGA) invites the world to come together for one powerful reason: to raise awareness for Erdheim-Chester Disease (ECD), a rare and often misunderstood form of blood cancer. The Run, Walk & Roll for Hope...
Every year, a powerful wave of determination, compassion, and solidarity spreads across the globe as individuals lace up their shoes to participate in the Erdheim-Chester Disease Global Alliance’s (ECDGA) annual Run, Walk & Roll for Hope. Scheduled for 2025, this...
