Participating in the ECDGA’s annual Run, Walk & Roll for Hope is powerful on its own—but forming a team can take your involvement to an entirely new level. Whether you’re rallying coworkers, uniting family members, or gathering a group of friends, creating a team for the 2025 Fun Run can multiply your impact and deepen your connection to a meaningful cause: raising awareness for Erdheim-Chester Disease (ECD).
Erdheim-Chester Disease is an ultra-rare form of blood cancer. Its rarity often leads to delayed diagnoses and a lack of general awareness, even within medical communities. By forming a team, you become a louder voice in a quiet space. Teams have the potential to raise more funds, spread awareness more widely, and create a stronger sense of community and purpose for everyone involved.
Why does forming a team matter? Teams generate energy and motivation. As individuals come together with a common goal—whether it’s to honor a loved one, support someone currently living with ECD, or simply stand in solidarity with the rare disease community—they create shared momentum. This collective effort is not only encouraging for participants but also draws greater attention from others who see the unity and purpose behind your group.
Teams often get creative: matching t-shirts, themed names, social media campaigns, and fundraising challenges. These personal touches don’t just build team spirit—they attract attention, invite curiosity, and lead to conversations that spread the word about ECD. Every step your team takes brings someone new into the conversation, helping to educate and inform.
ECDGA offers resources to help your team succeed, including toolkits for recruitment, tips for team fundraising, and ideas for spreading awareness. Whether your team is walking together in person or joining from different locations around the world, you’ll be united by a shared mission: to make Erdheim-Chester Disease known and to support those affected by it.
So don’t go it alone. Reach out, rally your people, and register a team for the 2025 Run, Walk & Roll for Hope. When we move together, we move mountains. And together, we can shine a brighter light on Erdheim-Chester Disease.
The Erdheim-Chester Disease Global Alliance (ECDGA) does not provide medical advice, diagnoses, or treatments. All content is for informational purposes only. Please consult with a healthcare provider for medical concerns.