by Steven May Jr | Jun 4, 2025 | Social Posts
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to share that our Medical Advisory Board member, Dr. Oshrat Hershkovitz-Rokah, will co-present a pivotal educational session at the 2025 European Hematology Association (EHA) Congress. This special #ASH–#EHA...
by admin | May 26, 2025 | Social Posts
Our host from Bellvitge University Hospital, Dr. Xavier Solanich, along with ECDGA board member Dr. Juvianee Estrada-Veras, warmly welcomes patients, families, and medical professionals to Barcelona for the annual Patient and Family Gathering. This special event...
by Steven May Jr | May 24, 2025 | Social Posts
The ECDGA staff and volunteers are hard at work making final preparations for this year’s Erdheim-Chester Disease Medical Symposium. Taking place at Bellvitge University Hospital in Barcelona, this annual event brings together leading medical professionals from around...
by Steven May Jr | May 24, 2025 | Social Posts
Dr. Gaurav Goyal of the University of Alabama at Birmingham (UAB) is pictured here proudly supporting the Erdheim-Chester Disease Global Alliance (ECDGA) during his time in Barcelona. Dr. Goyal has been an active voice in the ECD medical community, and his continued...
by admin | Sep 13, 2020 | Awareness, Living with ECD
By Chris Evans – ECD Awareness Week 2020 My sister, Raina, was diagnosed with a histiocytic disorder similar to Erdheim-Chester Disease in many ways. She fought valiantly against the disease for several years, even enduring an unusually painful bone marrow...
