An Erdheim-Chester Disease diagnosis brings questions no family should have to navigate alone. Your support helps ECDGA provide trusted information, connections to experienced care, and a community that understands. Our Year-End Campaign begins today, with donations...
Dr. Sam Reynolds of Moffitt Cancer Center shares his perspective on the importance of research in advancing understanding and care for Erdheim-Chester Disease. Watch the video and help us recognize the researchers working toward better answers and outcomes for the ECD...
In 2027, the ECD Global Alliance (ECDGA) and the Histiocyte Society (HS) will hold their first-ever joint annual meeting in Glasgow, Scotland, August 27–31, 2027. The planned schedule is: ECDGA Care Center Meeting & Patient Meet & Greet: August 27 ECDGA...
https://www.erdheim-chester.org/wp-content/uploads/2026/02/Rebecca-Boone-s-Story.mp4 Ziggy recently had the pleasure of interviewing Rebecca Boone about her journey with ECD. Rebecca shared her personal experiences, challenges, and the impact ECD has had on her life....
In this educational webinar, Dr. Mohamed G. Atta, MD, a kidney specialist at Johns Hopkins Hospital, an ECD referral care center, gives a detailed look at how Erdheim-Chester Disease (ECD) can affect the kidneys and what research has taught us about kidney health in...
