by admin | May 27, 2025 | Social Posts
During the 2025 Patient and Family Gathering in Barcelona, Father Charles Balnaves was recognized as the ECDGA Community Champion. This honor is given to individuals who embody the spirit of compassion, support, and advocacy within the Erdheim-Chester Disease...
by Steven May Jr | May 24, 2025 | Social Posts
The ECDGA staff and volunteers have officially arrived in Barcelona and are already hard at work preparing for the upcoming Patient and Family Gathering. This annual event is a special opportunity for the ECD community to come together in person, share experiences,...
