We are incredibly grateful to everyone who made this year’s ECDGA Virtual Fun Run, Walk, or Roll such a remarkable success. Because of the generosity and dedication of our amazing community, we are thrilled to share that together we raised $23,626.00! This...
As our ECDGA Virtual Fun Run, Walk, or Roll comes to a close, we invite you to be part of something bigger than a fundraiser. You can be part of a community united by hope, compassion, and a shared commitment to those affected by Erdheim-Chester Disease. Your support...
Time is running out! There are just 2 days remaining to take advantage of our $10,000 Matching Challenge, which means every dollar you give will be matched dollar for dollar until June 30 or until the match is fully used. Right now, we need to raise $2,583 to reach...
For many people, sunshine means outdoor activities, vacations, and time spent with family and friends. For individuals living with Erdheim-Chester Disease (ECD), however, sun exposure can sometimes present unique challenges that deserve attention. While ECD itself...
When someone hears the words “You have Erdheim-Chester Disease,” they often have more questions than answers. Where do I find information? Who can help me understand this disease? What treatment options exist? How can I find others experiencing this...
