Hope begins with expert care. ECD Care Centers bring together physicians with experience diagnosing and treating this ultra-rare disease. They also help advance research, educate healthcare professionals, and improve care for patients around the world. Click Here to...
Finding Movement That Works for You Living with Erdheim-Chester disease (ECD) often means adjusting to changes in energy, mobility, balance, strength, or endurance. While every person’s experience is different, one thing remains true: movement matters. The good...
You don’t have to be a scientist or a doctor to make an impact. You can help by: Sharing information about ECD. Supporting ECD Global Alliance. Listening to patient stories. Encouraging others to learn about rare diseases. Speaking up for those living with ECD....
Living with Erdheim-Chester Disease (ECD) often means paying close attention to your health. Between appointments, treatments, and the many demands of daily life, it can be easy to overlook one of the simplest wellness habits: staying hydrated. While hydration is...
Our hearts are full. Because of your incredible generosity, enthusiasm, and support, the ECDGA Virtual Fun Run, Walk, or Roll raised an amazing $23,626.00! Whether you donated, participated, shared our mission, or cheered others on, you made a difference. Together,...
