The ECDGA Virtual Fun Run/Walk/Roll is picking up momentum with participants from 25 states and counting. We’re on a mission to fill in the entire U.S. map, and we’d love to see your state represented. Whether you walk, run, or roll, you can make a difference. Join us...
When it comes to raising awareness for Erdheim-Chester Disease (ECD), every mile counts—and every method of movement matters. In the 2024 ECDGA Fun Run, one incredible team reminded us all of that in the best way possible. Meet Team Peddling Froetschers—a powerhouse...
This year’s ECDGA Patient and Family Gathering in Barcelona brought together patients, caregivers, and medical professionals from around the world. This group photo captures the spirit of connection and community that defines this annual event. Together, we share...
One of the most valuable parts of the ECDGA Patient and Family Gathering is the opportunity for patients and caregivers to hear directly from the experts. During this year’s event in Barcelona, leading Erdheim-Chester Disease physicians participated in a live Q&A...
Dr. Eli Diamond, a leading expert in Erdheim-Chester Disease, presented at the 2025 ECDGA Patient and Family Gathering in Barcelona. His dedication to advancing research and improving care continues to make a profound impact on the ECD community. We are honored to...
