by Steven May Jr | Jun 22, 2025 | Social Posts
When it comes to raising awareness for Erdheim-Chester Disease (ECD), every mile counts—and every method of movement matters. In the 2024 ECDGA Fun Run, one incredible team reminded us all of that in the best way possible. Meet Team Peddling Froetschers—a powerhouse...
by admin | May 26, 2025 | Social Posts
This year’s ECDGA Patient and Family Gathering in Barcelona brought together patients, caregivers, and medical professionals from around the world. This group photo captures the spirit of connection and community that defines this annual event. Together, we share...
by admin | May 26, 2025 | Social Posts
One of the most valuable parts of the ECDGA Patient and Family Gathering is the opportunity for patients and caregivers to hear directly from the experts. During this year’s event in Barcelona, leading Erdheim-Chester Disease physicians participated in a live Q&A...
by admin | May 26, 2025 | Social Posts
Dr. Eli Diamond, a leading expert in Erdheim-Chester Disease, presented at the 2025 ECDGA Patient and Family Gathering in Barcelona. His dedication to advancing research and improving care continues to make a profound impact on the ECD community. We are honored to...
by Steven May Jr | May 24, 2025 | Social Posts
The ECDGA staff and volunteers have officially arrived in Barcelona and are already hard at work preparing for the upcoming Patient and Family Gathering. This annual event is a special opportunity for the ECD community to come together in person, share experiences,...
