During ECD Awareness Month, we’ve talked about research, expert care, patients, caregivers, families, volunteers, advocacy, and the people working every day to create progress. But awareness shouldn’t end when the month does. Every person who learns,...
Caregivers give an extraordinary amount of themselves. They attend appointments, coordinate care, ask questions, provide encouragement, and help navigate difficult days. Their own needs can sometimes get overlooked. Supporting patients means supporting caregivers too....
ECD affects more than the person who receives the diagnosis. Families become appointment companions, researchers, organizers, advocates, listeners, and sources of strength while navigating their own questions and uncertainty. Sometimes family includes friends,...
Behind so much of what happens in the ECD community are people who simply decided to help. Volunteers contribute their time, talents, experience, and energy to support patients, increase awareness, and strengthen the ECD community. Every helping hand makes a...
No two experiences with ECD are exactly the same. Every patient and caregiver has a story. When those experiences are shared, they can educate others, create connections, and help someone else feel less alone. Your story matters. Take Action: Share something about...
