Research Matters

Research Matters

Dr. Sam Reynolds of Moffitt Cancer Center shares his perspective on the importance of research in advancing understanding and care for Erdheim-Chester Disease. Watch the video and help us recognize the researchers working toward better answers and outcomes for the ECD...
Research Funding Opportunity

Research Funding Opportunity

The ECD Global Alliance is accepting Letters of Intent for its 2026 Early Career Investigator Grant. Up to $60,000 USD will be awarded for a two-year research project focused on Erdheim-Chester Disease or related adult histiocytic disorders. International submissions...
ECDGA 3rd Annual Fun Run Begins June 1!

ECDGA 3rd Annual Fun Run Begins June 1!

The ECD Global Alliance is excited to announce that our 3rd Annual Fun Run will take place from June 1–30, 2026! Registration is officially open, and we invite patients, caregivers, families, friends, and supporters from around the world to join us for this special...
Ziggy Presents the ECDGA 2026 Award Honorees

Ziggy Presents the ECDGA 2026 Award Honorees

https://www.erdheim-chester.org/wp-content/uploads/2026/05/ezgif-1b6e08c1f56ee3e9.mp4   Ziggy is proud to announce the ECDGA 2026 Award Honorees individuals whose leadership, dedication, and advocacy continue to inspire meaningful change throughout the...
Last Chance to Register: 2026 Patient & Family Gathering

Last Chance to Register: 2026 Patient & Family Gathering

Time is almost up to secure your spot for one of the most meaningful events in the Erdheim-Chester Disease (ECD) community. The 2026 Patient & Family Gathering will take place in Birmingham, Alabama on April 29–30, 2026—and registration is closing soon. This...