Get Ready to Run, Walk & Roll for Hope! The 2025 Fun Run is Here!
The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2025 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & Roll! From June 16 through July 15, 2025, we invite YOU—patients, caregivers, supporters, and advocates around the world—to join our united movement of strength, visibility, and hope.
This fully virtual event is your opportunity to raise awareness of Erdheim-Chester Disease (ECD), an ultra-rare and often misunderstood blood cancer that affects just over a thousand families globally. Whether you lace up your sneakers, roll through your neighborhood, or walk a trail with your team, every step you take helps amplify our mission: awareness, support, education, and research for those impacted by ECD.
Order Yours Today!
Key Event Details:
- Event Dates: June 16 – July 15, 2025
- Registration: Opens June 1, 2025 — $20 per person
- Where: Anywhere in the world — it’s fully virtual
- T-shirts are available for purchase. Order Today!
- Form a team, represent your state or country, and walk with purpose
All funds raised support our global mission and bring us closer to better outcomes and ultimately, a cure. Let’s keep moving forward—together.
Questions? Reach out to [email protected]
Let’s step forward with strength. Let’s roll with resilience. Let’s run with hope.