Jerome Henson

Jerome has more than 30 years of leadership experience in education, having served as a teacher, principal, and curriculum supervisor throughout his distinguished career.  Jerome enjoys spending time outdoors hunting, working on woodworking projects, and, most importantly, spending time with his family. He and his wife share two daughters, a son-in-law, and a granddaughter,

«I am honored to join the Erdheim-Chester Disease Global Alliance and to serve a community that demonstrates such strength, resilience, and compassion” . I look forward to working alongside patients, families, volunteers, and supporters to continue advancing the important work of ECDGA.”