Press Releases
The Power of Faith
Holding strong to faith gives hope when terminally ill. Gerry Gallick tells the story of how he was diagnosed with ...
Strength in Faith: Local pastor fights through illness with scripture
Hope, faith, and community come together for this Erdheim-Chester Disease patient to strengthen his fight against ...
N.B. woman calling on government to cover cost of life-saving drug
“It’s really hard knowing there is a drug out there that if I can’t get then my life is going to be over.” – ...
DeRidder Thursday Study Club Supports Efforts to Fight Erdheim-Chester Disease
ECD Global Alliance president and founder, Kathy Brewer, spoke to a local club about the progress of the local ...
Global Excellence Awards Given for Rare Disease Advocacy
Exceptional contributors recognized at the Third Annual International Erdheim-Chester Disease Patient & Family ...
Italian Scientists Win Grant from Grassroots Louisiana Non-Profit
The ECD Global Alliance awards Erdheim-Chester Disease research grant for new treatment possibilities using the ...
Governor Bel Edwards Proclaims Rare Disease Day in Louisiana
Erdheim-Chester Disease is one of 7,000 rare diseases supported by the Louisiana proclamation.
Mayor Roberts proclaims Rare Disease Day in DeRidder
Erdheim-Chester Disease is one of 7,000 rare diseases supported by the local proclamation.
Culver’s of Highland Supports Rare Disease Day
Local rare-disease patient organizes fundraiser to raise awareness of Erdheim-Chester Disease in Indiana.
New Care Centers for Erdheim-Chester Disease Patients Support Patient Access
The Seattle Cancer Center Alliance and Toronto’s Mount Sinai Hospital join the ECD Care Center network.
Western Louisiana Nonprofit Grows International Care Center Network
Washington University in St. Louis and The Cancer Institute of São Paulo – the University of São Paulo in Brazil ...
St. Louis on the Map for Rare Disease Care
Washington University in St. Louis joins the Erdheim-Chester Disease Care Center Network.
No results found.