Press Releases
The Erdheim-Chester Disease Global Alliance Raises Awareness of ECD at USCAP 2017
Pathologists eagerly engage with ECDGA exhibitors to raise their awareness of ECD.
NIH Researchers Educate Doctors About ECD in New Orleans
Erdheim-Chester Disease and the NIH Undiagnosed Disease Program were the topics of discussion at the joint LSU and ...
Residents at LSUHSC Shreveport Learn About ECD
“Erdheim-Chester disease: Characteristics & Management” is presented by Filip Janku, MD, PhD
ECD Care Center Network Expansion Possible Because of Donors
Funding from ECD patients and their families and friends opens access to treatment facilities regardless of ...
Rare Disease Care Network Grows to Help More Patients
The Erdheim-Chester Disease Global Alliance adds four new ECD Care Centers in Canada and Europe.
Zelboraf Being Considered for FDA Approval
FDA Grants Priority Review and Breakthrough Therapy Designation for Zelboraf (vemurafenib) in Erdheim-Chester ...
The ECD Global Alliance Welcomes Israel ECD Referral Care Center
Assuta Medical Center joins an elite group of hospitals skilled in treating Erdheim-Chester disease patients.
Care Network Serves Australian Rare Disease Patients
The Erdheim-Chester Disease Global Alliance is proud to announce the first ECD Referral Care Center to be located ...
FDA Approves Zelboraf (Vemurafenib) for Erdheim-Chester Disease with BRAF V600 Mutation
First FDA-Approved drug for this rare disease
Stafford teen to be pilot for a day
A teenager suffering from Erdheim-Chester Disease gets to spend a day with military pilots and aircraft and pilot ...
Newmarket man with rare disease must battle system for coverage
Canadian patient tells about his journey with ECD and of hopes for a better healthcare system.
If I Die Tomorrow, God is Still in Control
“Despite the change that sickness has brought into Janet’s life, she welcomes each new day with open arms, and ...
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