Press Releases
New California ECD Care Center at Stanford
The Erdheim-Chester Disease Global Alliance welcomes the Stanford Histiocytosis Program at Stanford Health Care as ...
July 2018 University of Miami Medical Education Grand Round
The University of Miami hosted a medical presentation to further residents’ education in histiocytic disorders. ...
The Erdheim-Chester Disease Global Alliance Raises Awareness of ECD at Hematology Conference
Hematologists from around the world eagerly engage with ECDGA exhibitors to learn more about this rare disease.
Drug Trial Blog Reveals What It’s Like to be a Participant
ECD Global Alliance community member writes on his involvement in the Dabrafenib and Trametinib therapeutic trial ...
ECD Global Alliance Volunteers Recognized During National Volunteer Week
From April 23 – 30, volunteers from around the world were acknowledged for their contributions to the ECD community.
Erdheim-Chester Disease Experience from a Chinese Patient: 2012 to 2017
A Chinese ECD patient and ECDGA volunteer tell about his journey with this rare illness.
The Boy with Erdheim-Chester Disease
An inspiring story of a 15-year-old diagnosed with ultra-rare blood cancer found predominately in adults.
Patient Participates in Radio Interview for ECD Awareness Week 2017
An ECD patient, along with friends and family, set out to raise awareness of ECD and funding for the ECDGA with a ...
The Fresh Faces Project Stands With ECD Survivors: These Are Their Stories
ECD survivor Dawn Smith shares her journey living with this disease.
Caitlyn Captures Hope
“I, Caityln Walch, think ECD is very important. My grandpa was diagnosed with ECD about 2 years ago. That didn’t ...
The ECD Global Alliance Welcomes Chinese ECD Referral Care Center
Peking Union Medical College Hospital joins an elite group of hospitals skilled in treating Erdheim-Chester ...
The ECDGA Welcomes Vanderbilt University Medical Center to the ECD Referral Care Center Network
Nashville, TN is the newest location Erdheim-Chester Disease patients can go for treatment by ECD-knowledgeable doctors.
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