Press Releases
University of Alabama at Birmingham Joins the ECD Care Center Network
The ECDGA welcomes the O’Neal Comprehensive Cancer Center at the University of Alabama at Birmingham (UAB) into ...
San Diego Researcher Awarded 2019 ECDGA Research Grant
ECDGA awards a research grant to the University of California-San Diego to improve the understanding of ECD and ...
ECD Caregiver Study Open at Memorial Sloan Kettering
An observational study of informal caregivers (ICs) of patients with Erdheim-Chester Disease (ECD) and other ...
7th Annual International Erdheim-Chester Disease Medical Symposium
The ECD Medical Symposium was hosted by Dr. Lorenzo Dagna at the IRCCS San Raffaele Scientific Institute, ...
2019 Rare Disease Day
Over the last 11 years, Rare Disease Day has become iconic as the global campaign for raising awareness of rare ...
ECDGA Raises Awareness at Endocrinology Conference
Representatives from the ECDGA attended the Endocrinology Society’s annual conference in New Orleans to ...
FDA Granted Breakthrough Designation
The US Food and Drug Administration has granted a Breakthrough Therapy Designation to cobimetinib in the treatment ...
Drug Trial for Erdheim-Chester Disease Patients Now Recruiting
MD Anderson Cancer Center in Houston, Texas takes lead on Dabrafenib and Trametinib drug trial.
New York Pathologist Awarded 2017 Grant by ECD Global Alliance
The ECD Global Alliance awards an Erdheim-Chester disease research grant to MSKCC to define the disease-initiating ...
ECDGA Welcomes New ECD Care Center in North Carolina
The ECD Global Alliance welcomes Duke Cancer Institute in Durham, NC into the referral care center network that ...
ECD Patient Registry is Recruiting
The ECD Global Alliance announces the launch of the Registry for Patients with Erdheim-Chester Disease led by ...
June 2018 Houston Methodist Medical Education Grand Round|
Medical residents and physicians at Houston Methodist Hospital in Houston, TX learned about Erdheim-Chester ...
No results found.