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  • Australian/New Zealand Community Chat

    Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.

  • Erdheim-Chester Disease (ECD): Educational guidance for patients, families, and medical practitioners

    Speaker: Dr. Hind Salama, Consultant Hematology/Oncology at King Abdulaziz Medical City Riyadh/Saudi Arabia Date: Tuesday, September 22, 2026 Time: 11:00 AM CDT Dr. Hind Salama is a Consultant Adult Hematologist at King Abdulaziz Medical City (KAMC) in Riyadh, Saudi Arabia, and an Assistant Professor at King Saud bin Abdulaziz University for Health Sciences (KASU). She […]

  • Peer-to-Peer Community Chat

    Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.

  • French Community Chat

    Date: July 11, 2025

    Time: 8:00 AM CT to 9:00 AM CT

  • Italian Community Chat

    Date: Apr 15, 2025

    Time: 12:00 pm

  • Caregiver Community Chat

    Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.

  • Topic: Kidney disease in patients with histiocytosis

    Speaker: Augusto Vaglio, MD, PhD Nephrologist AOU Meyer, Firenze, Italy Date: Thursday, October 15, 2026 Time: 1:00 PM CT Dr Vaglio graduated at the University of Parma (Italy) in 2000, and at the same institution completed his Nephrology post-graduate fellowship (2005) and his PhD (2009). In 2005-2006 he was post-doctoral fellow at the Lowance Center […]

  • Australian/New Zealand Community Chat

    Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.

  • Spanish Community Chat

    Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.

  • Peer-to-Peer Community Chat

    Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.

  • Canadian Community Chat

    Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.

  • Portuguese-Speaking Community Chat

    Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.