By midnight tomorrow, our $10,000 Matching Challenge comes to an end, and we need just $999.00 to unlock the full match for the ECDGA Virtual Fun Run, Walk, or Roll. This is more than a fundraising goal. It is an opportunity for our community to come together and make...
Time is running out! There are just 2 days remaining to take advantage of our $10,000 Matching Challenge, which means every dollar you give will be matched dollar for dollar until June 30 or until the match is fully used. Right now, we need to raise $2,583 to reach...
Give a huge round of applause to Team Rocky Mountain High Captains, (Bob and Janet Froetscher), who completed an incredible 10-mile bike ride as part of the ECDGA Virtual Fun Run, Walk or Roll! Every mile they rode helps raise awareness, fund research, and provide...
For many people, sunshine means outdoor activities, vacations, and time spent with family and friends. For individuals living with Erdheim-Chester Disease (ECD), however, sun exposure can sometimes present unique challenges that deserve attention. While ECD itself...
When someone hears the words “You have Erdheim-Chester Disease,” they often have more questions than answers. Where do I find information? Who can help me understand this disease? What treatment options exist? How can I find others experiencing this...
Did you know? A gift made today goes twice as far because of our Final Week $10,000 Matching Challenge. Every dollar helps ECDGA provide patient support, educational resources, advocacy, research and connections to the global ECD community. Donate before June 30 and...
