The ECD Global Alliance is pleased to announce that registration is now open for the 2026 Medical Symposium, held at the Marnix E. Heersink Conference Center at the University of Alabama at Birmingham (UAB). Early bird registration is available until February 1, 2026....
The ECD Global Alliance is excited to announce that registration is now open for the 2026 Patient & Family Gathering and Medical Symposium, to be held in Birmingham, Alabama. This important annual event brings together patients, caregivers, family members,...
This weekend, representatives from the Erdheim-Chester Disease Global Alliance (ECDGA) participated in the American Society of Hematology (ASH) Annual Conference in Orlando, Florida—one of the world’s leading gatherings for hematology professionals and rare disease...
The Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to announce the addition of Nottingham University Hospitals NHS Trust in Nottingham, United Kingdom, as an officially recognized ECD Referral Care Center. Under the leadership of Dr. Mark Bishton, the...
For those living with Erdheim-Chester Disease, every day brings unknowns. But today, our community comes together to show that no one walks this journey alone. Your Giving Tuesday donation will be matched up to $90,000, doubling the love, support, and strength we can...
https://www.erdheim-chester.org/wp-content/uploads/2025/11/export.mp4 Today, our friend Ziggy the Zebra is stepping up to help raise awareness and support for those living with Erdheim-Chester Disease (ECD) — a rare and challenging condition that needs more...
