February 28: Rare Disease Day

February 28: Rare Disease Day

ECD Global Alliance shows our stripes for Erdheim-Chester Disease awareness on #RareDiseaseDay, February 28. There are 300 million people with rare diseases. The lack of scientific knowledge and quality information on each rare disease often results in a delay in...
Rare Disease Day is February 28: What do you plan to do?

Rare Disease Day is February 28: What do you plan to do?

There is so much progress yet to be made in researching treatments for Erdheim-Chester Disease (ECD) and all rare diseases. As an ultra-rare blood cancer that affects multiple organs, ECD remains widely underrecognized, and many patients face delays in diagnosis and...
Learn About Adult Histiocytosis – Experience Beautiful Barcelona

Learn About Adult Histiocytosis – Experience Beautiful Barcelona

Don’t miss this unique opportunity to learn more about adult histiocytosis and Erdheim-Chester Disease. Come to learn, to share your research, to connect with experts, or to experience beautiful Barcelona! No matter your motivation, you will be welcome! Be part of...