My family gives me a lot of emotional support with ECD and the accommodations I need. My response to treatment brings me a lot of hope, as when I first received Zelboraf, I felt immediately better. Along with the research being conducted on a rare disease.
Search Our Blogs
Recent Posts
- Research Funding Opportunity
- Your ECD Research Idea Could Receive Up to $60,000
- Funding Available: Up to $60,000 for Early Career Erdheim-Chester Disease Researchers
- Introducing Mary Burgin Executive Director Erdheim-Chester Disease Global Alliance
- Arabic Webinar with Dr. Hind Salama, Consultant in Hematology and Oncology in Riyadh, Saudi Arabia: Erdheim-Chester Disease (ECD): An Educational guidance to Patients, Families, and Medical Professionals

