by Steven May Jr | Sep 11, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to share that every session from our 2025 Patient & Family Gathering and Medical Symposium—held May 26–27 in vibrant Barcelona—is now available to watch online. Whether you joined us in person or are...
by Steven May Jr | Sep 10, 2025 | News
This Erdheim-Chester Disease Awareness Week, we’re honored to introduce you to Edith and Mike Watters, a remarkable couple whose journey reflects the courage, resilience, and creativity of our community. Edith is living with Erdheim-Chester Disease (ECD), an...
by Steven May Jr | Sep 10, 2025 | News
At the 2025 Erdhem-Chester Disease Medical Symposium in Barcelona, the ECDGA Junior Investigator Award went to Laura Eurelings of Erasmus University Medical Centre, Rotterdam. Her poster, “Anti-IL-6 Therapy in Rare Histiocytic Disorders: Erdheim-Chester and...
by Steven May Jr | Sep 9, 2025 | News
https://www.erdheim-chester.org/wp-content/uploads/2025/09/ECD-2nd-edit.mp4...
by Steven May Jr | Sep 8, 2025 | Community Fundraisers, News
ECD Awareness Week is September 8–14, 2025, and we need YOU to help raise awareness and show the world what it means to be part of the ECD family. Awareness Week is important because Erdheim-Chester Disease (ECD) is so rare that many people— even in the medical...
