We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held August 27-28, 2027, in Glasgow, Scotland! This special gathering will bring together patients, caregivers, family members, medical professionals, and supporters from around...
The ECD Global Alliance is accepting Letters of Intent for its 2026 Early Career Investigator Grant. Up to $60,000 USD will be awarded for a two-year research project focused on Erdheim-Chester Disease or related adult histiocytic disorders. International submissions...
Up to $60,000 USD is available for a two-year project advancing research into Erdheim-Chester Disease and related adult histiocytic disorders. The ECD Global Alliance is now accepting letters of intent for its Early Career Investigator Grant, a research funding...
ECD may be rare, but no one has to face it alone. Across the world, patients, caregivers, physicians, researchers, volunteers, and advocates are working together to build a stronger future for everyone affected by ECD. Distance may separate us, but our community...
Today’s discoveries create tomorrow’s possibilities. Research has transformed what we know about ECD and continues to improve diagnosis, expand treatment options, and deepen our understanding of this rare disease. Every advance begins with curiosity,...
