Progress Update Goal: $25,000 We still have work to do, but together we can get there. This week’s matching challenge means every donation has twice the impact. Make a gift, share your fundraiser, and help us spread the word. Every dollar matters. Every...
This week, every donation goes twice as far. The ECDGA is excited to announce a special Week 3 Matching Gift Challenge for the 3rd Annual Fun Run, Walk or Roll. A generous donor has pledged to match every donation made during Week 3 up to $10,000. This means every...
One of the best parts of the ECDGA Fun Run, Walk or Roll is seeing our community come together from around the world. This week, we’re asking participants to help us tell the story of our event through photos. Whether you’re walking with family, training...
We want to feature YOU during the ECDGA 3rd Annual Fun Run, Walk or Roll! Send us photos of: Team members Walks, runs or Rolls Team gatherings Your photos may be featured on our social media pages throughout the event! Drop them in the comments or send them directly...
The Erdheim-Chester Disease Global Alliance is pleased to announce that the videos from our recent Patient & Family Gathering and Medical Symposium are now available to view. Each year, these events bring together patients, caregivers, family members, researchers,...
