by Steven May Jr | Sep 30, 2025 | News
This week, ECDGA President Diane Schriner, Board Member Paul Hendrie, MD, and team member Jerome Henson are proudly representing the Erdheim-Chester Disease Global Alliance at the 41st Annual Meeting of the Histiocyte Society! This international meeting brings...
by Asmaa Javed | Sep 23, 2025 | Webinar Recordings
Presented by Dr. Gaurav Goyal, University of Alabama at Birmingham In partnership with the Erdheim-Chester Disease Global Alliance (ECDGA) This presentation explores the importance of survivorship research in Erdheim-Chester Disease (ECD) and the critical role...
by admin | May 27, 2025 | Social Posts
At the 2025 ECDGA Patient and Family Gathering in Barcelona, Professor Julien Haroche was honored with the Mark Heaney Award for Excellence in ECD Clinical Care and Research. This award recognizes individuals who have made significant contributions to advancing the...
by admin | May 27, 2025 | Social Posts
At the 2025 ECDGA Celebration Dinner in Barcelona, the Host Award was presented to Dr. Xavier Solanich of Bellvitge Hospital. The award was given in recognition of his outstanding support and hospitality in welcoming patients, family members, and medical professionals...
by admin | May 26, 2025 | Social Posts
Dr. Eli Diamond, a leading expert in Erdheim-Chester Disease, presented at the 2025 ECDGA Patient and Family Gathering in Barcelona. His dedication to advancing research and improving care continues to make a profound impact on the ECD community. We are honored to...
