At the 2025 ECDGA Patient and Family Gathering in Barcelona, Professor Julien Haroche was honored with the Mark Heaney Award for Excellence in ECD Clinical Care and Research. This award recognizes individuals who have made significant contributions to advancing the understanding and treatment of Erdheim-Chester Disease.
Professor Haroche’s leadership, research, and unwavering commitment to the ECD community continue to shape the future of care and bring hope to patients and families around the world.
To learn more about the award and our ongoing efforts, visit www.erdheim-chester.org.
The Erdheim-Chester Disease Global Alliance (ECDGA) does not provide medical advice, diagnoses, or treatments. All content is for informational purposes only. Please consult with a healthcare provider for medical concerns.