by admin | Dec 11, 2025 | News
The ECD Global Alliance is pleased to announce that registration is now open for the 2026 Medical Symposium, held at the Marnix E. Heersink Conference Center at the University of Alabama at Birmingham (UAB). Early bird registration is available until February 1, 2026....
by admin | Dec 11, 2025 | News
The ECD Global Alliance is excited to announce that registration is now open for the 2026 Patient & Family Gathering and Medical Symposium, to be held in Birmingham, Alabama. This important annual event brings together patients, caregivers, family members,...
by admin | Dec 9, 2025 | News
This weekend, representatives from the Erdheim-Chester Disease Global Alliance (ECDGA) participated in the American Society of Hematology (ASH) Annual Conference in Orlando, Florida—one of the world’s leading gatherings for hematology professionals and rare disease...
by admin | Dec 2, 2025 | News
For those living with Erdheim-Chester Disease, every day brings unknowns. But today, our community comes together to show that no one walks this journey alone. Your Giving Tuesday donation will be matched up to $90,000, doubling the love, support, and strength we can...
by admin | Nov 5, 2025 | News
Last week, ECDGA President Diane Schriner and ECDGA Staff Member Jerome Henson represented the Erdheim-Chester Disease Global Alliance (ECDGA) at the American College of Rheumatology (ACR) Annual Conference, joined by Dr. Mitali Sen, a rheumatologist from the...
