Living with Erdheim-Chester Disease (ECD) often means managing fatigue, pain, inflammation, and the emotional weight of a rare condition. Quality sleep isn’t just a luxury—it’s a critical part of maintaining your overall health and improving daily functioning. During...
We’re excited to announce that the official 2026 Erdheim-Chester Disease Global Alliance (ECDGA) Patient & Family Gathering T-shirt is now available! This year’s design celebrates community, connection, and strength—featuring a vibrant Birmingham skyline and...
The Erdheim-Chester Disease Global Alliance (ECDGA) invites physicians, researchers, and healthcare professionals to attend the ECDGA Medical Symposium, taking place April 30 – May 2, 2026, in Birmingham, Alabama. This symposium will bring together experts and...
Registration is open for the Patient and Family Gathering taking place April 29–30, 2026, in Birmingham, Alabama. This event brings together patients, families, and caregivers to connect with others in the community, hear from experts, and learn about the latest...
https://www.erdheim-chester.org/wp-content/uploads/2026/02/Today-Is-Rare-Disease-Day-Stand-With-Us.mp4 Your support helps create awareness, compassion, and hope. Here’s how you can help today: Share your story Make a gift to support our mission Learn more and advocate...
