by admin | Oct 28, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to announce that Dr. Gaurav Goyal of the University of Alabama at Birmingham (UAB) recently met with ECDGA Board President Diane Schriner to begin planning the 2026 ECDGA Patient & Family Gathering and...
by Steven May Jr | Sep 11, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to share that every session from our 2025 Patient & Family Gathering and Medical Symposium—held May 26–27 in vibrant Barcelona—is now available to watch online. Whether you joined us in person or are...
by admin | May 27, 2025 | Social Posts
Members of the ECDGA Medical Advisory Board and the Board of Directors came together during the Celebration Dinner at the 2025 Patient and Family Gathering in Barcelona. This moment reflects the collaboration and dedication of those working behind the scenes to...
by admin | May 27, 2025 | Social Posts
During the 2025 Patient and Family Gathering in Barcelona, Father Charles Balnaves was recognized as the ECDGA Community Champion. This honor is given to individuals who embody the spirit of compassion, support, and advocacy within the Erdheim-Chester Disease...
by admin | May 27, 2025 | Social Posts
At the 2025 ECDGA Patient and Family Gathering in Barcelona, Professor Julien Haroche was honored with the Mark Heaney Award for Excellence in ECD Clinical Care and Research. This award recognizes individuals who have made significant contributions to advancing the...
