• +1-337-202-5200
  • [email protected]
  • English
    • Français (French)
    • Deutsch (German)
    • Español (Spanish)
    • 繁體中文 (Chinese (Traditional))
    • Nederlands (Dutch)
    • Ελληνικά (Greek)
    • עברית (Hebrew)
    • हिन्दी (Hindi)
    • Italiano (Italian)
    • Norsk bokmål (Norwegian Bokmål)
    • Português (Portuguese (Brazil))
  • English
    • French
    • German
    • Spanish
    • Chinese (Traditional)
    • Dutch
    • Greek
    • Hebrew
    • Hindi
    • Italian
    • Norwegian Bokmål
    • Portuguese (Brazil)
  • What is ECD
        • Overview
        • Treatments
        • Symptoms
        • Care Centers
        • Diagnosis
        • Care Monitoring
  • Patients/Loved Ones
        • Care Centers
        • Webinars
        • Testimonials
        • What Should I Do
        • Chat Virtually
        • Treatment Trials
        • Family / Carer General Information
        • Connect
        • In-person Meetings
        • Patient Surveys / Studies
        • Family / Carer Resources
        • Self-Care with ECD
        • Patient Resources
        • Request More Information
        • Family Members
        • Caregiver Connect
  • Medical Professionals
        • Care Centers
        • Treatment Trials
        • General Information
        • Patient Surveys / Studies
        • Grant Opportunities
        • Payer Appeals
        • Medical Resources
        • Medical Symposiums
        • Specialists
  • About Us
        • Our Story
        • Board and Staff
        • Resources
        • Medical Advisory Board
        • Member Locations
        • Blog
        • Patient Stories
        • Past Events
        • News
  • How to Help
        • How to Fundraise
        • Spread the Word
        • Host Fundraisers
        • Award Nominations
        • Volunteer
  • Join Us
  • Donate
  • Join Us
  • Donate
Is Your State on the Map? Join the ECDGA Challenge

Is Your State on the Map? Join the ECDGA Challenge

by Steven May Jr | Jun 26, 2025 | Social Posts

The ECDGA Virtual Fun Run/Walk/Roll is picking up momentum with participants from 25 states and counting. We’re on a mission to fill in the entire U.S. map, and we’d love to see your state represented. Whether you walk, run, or roll, you can make a difference. Join us...
Team Peddling Froetschers: Biking for a Cure in the ECDGA Fun Run

Team Peddling Froetschers: Biking for a Cure in the ECDGA Fun Run

by Steven May Jr | Jun 22, 2025 | Social Posts

When it comes to raising awareness for Erdheim-Chester Disease (ECD), every mile counts—and every method of movement matters. In the 2024 ECDGA Fun Run, one incredible team reminded us all of that in the best way possible. Meet Team Peddling Froetschers—a powerhouse...

Get in Touch

Donate

+1-337-202-5200
[email protected]

What is ECD?
  • Overview
  • Symptoms
  • Diagnosis
  • Treatments

Patients/Loved Ones

  • Chat Virtually
  • In-person Meetings
  • Patient Resources
  • Webinars
About Us
  • Our Story
  • Board and Staff
  • Resources
  • Medical Advisory Board
How to Help
  • Host Fundraisers
  • How to Fundraise
  • Volunteer
  • Spread the Word
Medical Professionals
  • Medical Resources
  • Treatment Trials
  • Grant Opportunities
  • Medical Symposium
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow


This website is for informational purposes only.

Designed by The Egghead. Copyright 2025. All rights Reserved ECD GLOBAL ALLIANCE. A 501(c)(3) organization. EIN# 27-0759192.

ECD Global Alliance Logo
Charity Navigator Four-Star Rating

!

Back to Top

ECD Global Alliance does not provide Medical Advice, Diagnosis or Treatment.

Terms of Use  and  Privacy Policy

h

Join Us



Donate



Care Centers