by admin | May 27, 2025 | Social Posts
At the 2025 ECDGA Patient and Family Gathering in Barcelona, Professor Julien Haroche was honored with the Mark Heaney Award for Excellence in ECD Clinical Care and Research. This award recognizes individuals who have made significant contributions to advancing the...
by admin | May 26, 2025 | Social Posts
One of the most valuable parts of the ECDGA Patient and Family Gathering is the opportunity for patients and caregivers to hear directly from the experts. During this year’s event in Barcelona, leading Erdheim-Chester Disease physicians participated in a live Q&A...