The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to share that our Medical Advisory Board member, Dr. Oshrat Hershkovitz-Rokah, will co-present a pivotal educational session at the 2025 European Hematology Association (EHA) Congress. This special #ASH–#EHA...
Our host from Bellvitge University Hospital, Dr. Xavier Solanich, along with ECDGA board member Dr. Juvianee Estrada-Veras, warmly welcomes patients, families, and medical professionals to Barcelona for the annual Patient and Family Gathering. This special event...
The ECDGA staff and volunteers are hard at work making final preparations for this year’s Erdheim-Chester Disease Medical Symposium. Taking place at Bellvitge University Hospital in Barcelona, this annual event brings together leading medical professionals from around...
Dr. Gaurav Goyal of the University of Alabama at Birmingham (UAB) is pictured here proudly supporting the Erdheim-Chester Disease Global Alliance (ECDGA) during his time in Barcelona. Dr. Goyal has been an active voice in the ECD medical community, and his continued...
By Chris Evans – ECD Awareness Week 2020 My sister, Raina, was diagnosed with a histiocytic disorder similar to Erdheim-Chester Disease in many ways. She fought valiantly against the disease for several years, even enduring an unusually painful bone marrow...
