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Uniting for Rare Disease Research: ECDGA at the 41st Histiocyte Society Annual Meeting

Uniting for Rare Disease Research: ECDGA at the 41st Histiocyte Society Annual Meeting

Sep 30, 2025

This week, ECDGA President Diane Schriner, Board Member Paul Hendrie, MD, and team member Jerome Henson are proudly representing the Erdheim-Chester Disease Global Alliance at the 41st Annual Meeting of the Histiocyte Society! This international meeting brings...
Survivorship in Erdheim-Chester Disease: Incorporating the Patient Voice

Survivorship in Erdheim-Chester Disease: Incorporating the Patient Voice

Sep 23, 2025

Presented by Dr. Gaurav Goyal, University of Alabama at Birmingham In partnership with the Erdheim-Chester Disease Global Alliance (ECDGA) This presentation explores the importance of survivorship research in Erdheim-Chester Disease (ECD) and the critical role...
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