by admin | May 27, 2025 | Social Posts
During the 2025 Patient and Family Gathering in Barcelona, Father Charles Balnaves was recognized as the ECDGA Community Champion. This honor is given to individuals who embody the spirit of compassion, support, and advocacy within the Erdheim-Chester Disease...
by Steven May Jr | May 7, 2025 | ECDGA News
Each year, the Erdheim-Chester Disease Global Alliance (ECDGA) hosts a singular event that brings together physicians, researchers, and care specialists from across disciplines and across borders. The ECDGA Medical Symposium is not just a scientific meeting—it is the...
by Steven May Jr | May 7, 2025 | ECDGA News
Title: “Layers of Complexity: ECD Diagnosis and Management in the Presence of Confounding Comorbidities” Time: 1:30 PM – 1:55 PM Location: Bellvitge University Hospital Auditorium As Erdheim-Chester Disease (ECD) becomes more recognized and understood within the...
by Steven May Jr | May 7, 2025 | ECDGA News
The Erdheim-Chester Disease Global Alliance (ECDGA) welcomes medical professionals from around the world to the 2025 Annual Medical Symposium on Erdheim-Chester Disease, held in Barcelona at Bellvitge University Hospital. This annual gathering is the only...
by Steven May Jr | May 7, 2025 | ECDGA News
Speaker: Eli Diamond, MD Time: 10:50 AM – 11:05 AM Date: May 26, 2025 Patient & Family Gathering For many individuals living with Erdheim-Chester Disease (ECD), the involvement of the brain and eyes can be among the most difficult and frightening complications to...
