The ECDGA Virtual Fun Run/Walk/Roll is gaining global traction, with participants already joining in from across the United States and beyond. We recently added Canada, Great Britain, New Zealand, and Australia and now we’re calling on supporters from around the world...
The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2025 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & Roll! From June 16 through July 15, 2025, we invite YOU—patients, caregivers, supporters, and advocates around...
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to share that our Medical Advisory Board member, Dr. Oshrat Hershkovitz-Rokah, will co-present a pivotal educational session at the 2025 European Hematology Association (EHA) Congress. This special #ASH–#EHA...
During the 2025 ECDGA Medical Symposium in Barcelona, physicians from around the world shared their latest findings and research focused on Erdheim-Chester Disease. In this photo, one of our participating doctors discusses emerging insights and ongoing studies that...
Here is the group photo of the doctors who participated in the 2025 ECDGA Medical Symposium in Barcelona. These physicians and researchers represent the global collaboration driving forward the science, diagnosis, and treatment of Erdheim-Chester Disease. We are...
