The holiday season is often filled with celebration, connection, and meaningful traditions. But for individuals living with Erdheim-Chester disease (ECD), this time of year can also bring unique challenges—fatigue, stress, disrupted routines, medical appointments,...
The ECD Global Alliance is pleased to announce that registration is now open for the 2026 Medical Symposium, held at the Marnix E. Heersink Conference Center at the University of Alabama at Birmingham (UAB). Early bird registration is available until February 1, 2026....
The ECD Global Alliance is excited to announce that registration is now open for the 2026 Patient & Family Gathering and Medical Symposium, to be held in Birmingham, Alabama. This important annual event brings together patients, caregivers, family members,...
This weekend, representatives from the Erdheim-Chester Disease Global Alliance (ECDGA) participated in the American Society of Hematology (ASH) Annual Conference in Orlando, Florida—one of the world’s leading gatherings for hematology professionals and rare disease...
For those living with Erdheim-Chester Disease, every day brings unknowns. But today, our community comes together to show that no one walks this journey alone. Your Giving Tuesday donation will be matched up to $90,000, doubling the love, support, and strength we can...
