by Steven May Jr | Jul 31, 2025 | News
The ECD Global Alliance (ECDGA) is proud to announce the release of the complete video recordings from the 2025 Annual Patient & Family Gathering in Barcelona. If you were unable to attend in person or would like to revisit the incredible insights shared by global...
by Steven May Jr | Jul 29, 2025 | News
Please join me in welcoming Diane Schriner as the new ECD Global Alliance President. Diane has been an integral part of the ECDGA Board of Directors since 2018 and has served as Vice President since 2021. During that time, she has exemplified extraordinary compassion,...
by Steven May Jr | Jul 5, 2025 | Social Posts
Time is ticking. The ECDGA Get Ready to Run, Walk & Roll for Hope Fun Run ends on July 15, and we are so close to our goal. With $20,999.62 raised, we are just a few steps away from reaching our $25,000 target—but we need your help to get there. Every registration...
by Steven May Jr | Jun 26, 2025 | Social Posts
The ECDGA Virtual Fun Run/Walk/Roll is picking up momentum with participants from 25 states and counting. We’re on a mission to fill in the entire U.S. map, and we’d love to see your state represented. Whether you walk, run, or roll, you can make a difference. Join us...
