Caring for the Caregivers

Caring for the Caregivers

Caregivers give an extraordinary amount of themselves. They attend appointments, coordinate care, ask questions, provide encouragement, and help navigate difficult days. Their own needs can sometimes get overlooked. Supporting patients means supporting caregivers too....
Save the Date!

Save the Date!

We’re excited to announce that the 12th Annual Erdheim-Chester Disease Patient & Family Gathering will be held in Glasgow, Scotland, on August 27 and 28, 2027! Join patients, caregivers, family members, and friends from around the world for two days of...