+1-337-202-5200
support@erdheim-chester.org
Join Us
Donate
English
English
French Spanish German Italian Portuguese Hebrew Hindi Greek Chinese Dutch Norwegian
ECD Global Alliance Logo
English
English
French Spanish German Italian Portuguese Hebrew Hindi Greek Chinese Dutch Norwegian
  • What is ECD
        • Overview
        • Care Centers
        • Diagnosis
        • Care Monitoring
        • Treatments
        • Symptoms
  • Patients/Loved Ones
        • Care Centers
        • Webinars
        • Testimonials
        • What Should I Do
        • Community Chats
        • Treatment Trials
        • Family / Carer General Information
        • Connect
        • Patient & Family Gatherings
        • Patient Surveys / Studies
        • Family / Carer Resources
        • Self-Care with ECD
        • Patient Resources
        • Request More Information
        • Family Members
        • Caregiver Connect
  • Medical Professionals
        • Care Centers
        • Treatment Trials
        • General Information
        • Patient Surveys / Studies
        • Grant Opportunities
        • Payer Appeals
        • Medical Resources
        • Annual Medical Symposiums
  • About Us
        • Our Story
        • Board and Staff
        • Resources
        • Medical Advisory Board
        • Member Locations
        • News
        • Patient Stories
        • Events
        • History
  • How to Help
        • Spread the Word
        • Award Nominations
        • Host Fundraisers
        • Ways to Donate
        • Volunteer
  • Join Us
  • Donate
  • Join Us
  • Donate

Detection of an NRAS mutation in Erdheim-Chester disease

Dec 28, 2016

Eli L. Diamond, Omar Abdel-Wahab, Elena Pentsova, Laetitia Borsu, April Chiu, Julie Teruya-Feldstein, David M. Hyman, and Marc Rosenblum Blood: 122 (6); 2013 Aug 8

Erdheim-Chester Disease With Cardiovascular Involvement and BRAF V600E Mutation

Dec 28, 2016

Kenichi Okamura, Yoshihiro Suematsu, Sei Morizumi, Mitsuhiro Kawata, Yuichi Dai, Mitsunori Yamakawa, Minoru Ono Circulation Journal Vol. 80 (2016) No. 7 1657-1659; June 24, 2016

Erdheim-Chester Disease with Emperipolesis: A Unique Case Involving the Heart

Dec 28, 2016

Pengcheng Zhu, Naping Li, Lu Yu, Mariajose Navia Miranda, Guoping Wang, Yaqi Duan doi:10.4143/crt.2016.078; Published online: 28 July 2016

Diffuse reduction of cerebral grey matter volumes in Erdheim-Chester disease

Dec 28, 2016

Eli L. Diamond, Vaios Hatzoglou, Sneha Patel, Omar Abdel-Wahab, Raajit Rampal, David M. Hyman, Andrei I. Holodny and Ashish Raj Orphanet Journal of Rare Diseases 2016 11:109; Published 2 August 2016

Unusual presentation of Erdheim-Chester disease in a child with acute lymphoblastic leukemia

Dec 27, 2016

Archana George Vallonthaiel, Asit Ranjan Mridha, Shivanand Gamanagatti, Manisha Jana, Mehar Chand Sharma, Shah Alam Khan, and Sameer Bakhshi World J Radiol. 2016 Aug 28; 8(8): 757–763. Published online 2016 Aug 28. doi: 10.4329/wjr.v8.i8.757 PMCID:...
« Older Entries
Next Entries »

Search Our Blogs

Recent Posts

  • Introducing Mary Burgin Executive Director Erdheim-Chester Disease Global Alliance
  • Research Matters
  • Save the Date: 2027 ECDGA Medical Symposium in Glasgow
  • Save the Date: 2027 ECDGA Patient and Family Gathering
  • Research Funding Opportunity
ECD Global Alliance Logo

Dedicated to the awareness, support, education, and research related to Erdheim-Chester Disease since 2008.

Quick Links

What is ECD

Care Centers

Patient Resources

Research

Get Involved

Join Us

Donate

Community Chats

Events

Contact

+1-337-202-5200

Email Us

P.O. Box 775
DeRidder, LA 70634 USA

Platinum Transparency 2025
Charity Navigator
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow

Rare Connect
Designed by Ask the Egghead, Inc. © 2026 ECD Global Alliance. All rights reserved.
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow

Designed by Ask the Egghead, Inc. © 2026 ECD Global Alliance. All rights reserved.

h

Join Us



Donate



Care Centers



Events

h

Join Us



Donate



Care Centers



Events

We've detected you might be speaking a different language. Do you want to change to:
English
English
English
Change language to French French
Change language to Spanish Spanish
Change language to German German
Change language to Italian Italian
Change language to Portuguese Portuguese
Change language to Hebrew Hebrew
Change language to Hindi Hindi
Change language to Greek Greek
Change language to Chinese Chinese
Change language to Dutch Dutch
Change language to Norwegian Norwegian
Change Language
Close and do not switch language