Skip to main content
+1-337-202-5200
support@erdheim-chester.org
Join Us
Donate
English
English
French Spanish German Italian Portuguese Hebrew Hindi Greek Chinese Dutch Norwegian
ECD Global Alliance Logo
English
English
French Spanish German Italian Portuguese Hebrew Hindi Greek Chinese Dutch Norwegian
  • Erdheim-Chester Disease Global Alliance — Home
  • What is ECD
        • Overview
        • Care Centers
        • Diagnosis
        • Care Monitoring
        • Treatments
        • Symptoms
  • Patients/Loved Ones
        • Care Centers
        • Webinars
        • Testimonials
        • What Should I Do
        • Community Chats
        • Treatment Trials
        • Family / Carer General Information
        • Connect
        • Patient & Family Gatherings
        • Patient Surveys / Studies
        • Family / Carer Resources
        • Self-Care with ECD
        • Patient Resources
        • Request More Information
        • Family Members
        • Caregiver Connect
  • Medical Professionals
        • Care Centers
        • Treatment Trials
        • General Information
        • Patient Surveys / Studies
        • Grant Opportunities
        • Payer Appeals
        • Medical Resources
        • Annual Medical Symposiums
  • About Us
        • Our Story
        • Board and Staff
        • Resources
        • Medical Advisory Board
        • Member Locations
        • News
        • Patient Stories
        • Events
        • History
  • How to Help
        • Spread the Word
        • Award Nominations
        • Host Fundraisers
        • Ways to Donate
        • Volunteer
  • Join Us
  • Donate
  • Join Us
  • Donate

January 18, 2014

Feb 12, 2014

January 11, 2014

Feb 12, 2014

January 4, 2014

Feb 12, 2014

Design and Creation of a Global Registry Database for Erdheim-Chester Disease

Design and Creation of a Global Registry Database for Erdheim-Chester Disease

Jan 23, 2014

Matthew Collin (Newcastle University, Newcastle upon Tyne, UK) Eli Diamond, MD (Memorial Sloan Kettering Cancer Center, New York, NY US) Year Awarded: 2014 Amount: 316,000 USD The 2014 grant was awarded to principal investigators Eli Diamond, MD from Memorial...
Next Entries »

Search Our Blogs

Recent Posts

  • Help the Next Family Find Answers.
  • One family’s search for answers became a place to turn
  • One Family’s Search for Answers Became a Community
  • Erdheim-Chester Disease Global Alliance End of Year Campaign 2026
  • Research Funding Opportunity
ECD Global Alliance Logo

Dedicated to the awareness, support, education, and research related to Erdheim-Chester Disease since 2008.

Quick Links

What is ECD

Care Centers

Patient Resources

Research

Get Involved

Join Us

Donate

Community Chats

Events

Contact

+1-337-202-5200

Email Us

P.O. Box 775
DeRidder, LA 70634 USA

Platinum Transparency 2025
Charity Navigator
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow

Rare Connect

Designed by Ask the Egghead, Inc. © 2026 ECD Global Alliance. All rights reserved.

  • Follow
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow

Designed by Ask the Egghead, Inc. © 2026 ECD Global Alliance. All rights reserved.

h

Join Us



Donate



Care Centers



Events

We've detected you might be speaking a different language. Do you want to change to:
English
English
English
Change language to French French
Change language to Spanish Spanish
Change language to German German
Change language to Italian Italian
Change language to Portuguese Portuguese
Change language to Hebrew Hebrew
Change language to Hindi Hindi
Change language to Greek Greek
Change language to Chinese Chinese
Change language to Dutch Dutch
Change language to Norwegian Norwegian
Change Language
Close and do not switch language
Secret Link