• +1-337-202-5200
  • [email protected]
  • English
    • Français (French)
    • Deutsch (German)
    • Español (Spanish)
    • 繁體中文 (Chinese (Traditional))
    • Nederlands (Dutch)
    • Ελληνικά (Greek)
    • עברית (Hebrew)
    • हिन्दी (Hindi)
    • Italiano (Italian)
    • Norsk bokmål (Norwegian Bokmål)
    • Português (Portuguese (Brazil))
  • English
    • French
    • German
    • Spanish
    • Chinese (Traditional)
    • Dutch
    • Greek
    • Hebrew
    • Hindi
    • Italian
    • Norwegian Bokmål
    • Portuguese (Brazil)
  • What is ECD
        • Overview
        • Treatments
        • Symptoms
        • Care Centers
        • Diagnosis
        • Care Monitoring
  • Patients/Loved Ones
        • Care Centers
        • Webinars
        • Testimonials
        • What Should I Do
        • Chat Virtually
        • Treatment Trials
        • Family / Carer General Information
        • Connect
        • In-person Meetings
        • Patient Surveys / Studies
        • Family / Carer Resources
        • Self-Care with ECD
        • Patient Resources
        • Request More Information
        • Family Members
        • Caregiver Connect
  • Medical Professionals
        • Care Centers
        • Treatment Trials
        • General Information
        • Patient Surveys / Studies
        • Grant Opportunities
        • Payer Appeals
        • Medical Resources
        • Medical Symposiums
        • Specialists
  • About Us
        • Our Story
        • Board and Staff
        • Resources
        • Medical Advisory Board
        • Member Locations
        • Blog
        • Patient Stories
        • Past Events
        • News
  • How to Help
        • How to Fundraise
        • Spread the Word
        • Host Fundraisers
        • Award Nominations
        • Volunteer
  • Join Us
  • Donate
  • Join Us
  • Donate

ECD Patient Learns to Scuba Dive

by Asmaa Javed | Dec 31, 2009 | News

A story about a young woman with Erdheim-Chester Disease who has been blinded by the disease. In spite of this, she learned to scuba dive.

A Multiplication Problem

by Asmaa Javed | Dec 28, 2009 | Published Papers

Furlanetto TW, Fischer J, Polanczyk CA, Vasconcelos MV. Am J Med. 2009 Jan;122(1):32-4

Cardiac Erdheim-Chester

by Asmaa Javed | Dec 28, 2009 | Published Papers

Driss Bassou, Abdenacer El Kharras, Taoufik Amezyane, Hassan En Nouali, Mohamed Elbaaj, Mohamed Benameur and Abdellatif Darbi Intern Med. 2009;48(1):83-4. Epub 2009 Jan 1

Symmetric giant xanthogranulomas in Erdheim-Chester disease

by Asmaa Javed | Dec 28, 2009 | Published Papers

Takafumi Taguchi & Shigetoshi Sano & Yasumasa Iwasaki & Yoshio Terada Eur J Nucl Med Mol Imaging 2009 Mar 19.

8th European Congress on Epileptology, Berlin, Germany, 21 – 25 September 2008 – T220 Erdeim-Chester Disease and Epilepsy: Case Report

by Asmaa Javed | Dec 28, 2009 | Published Papers

E. Vitelli, R. Spagliardi, V. Badioni, L. Cucurachi, and M. Riva Epilepsia. 2009 Apr;50 Suppl 4:1-261
« Older Entries

Get in Touch

Donate

+1-337-202-5200
[email protected]

What is ECD?
  • Overview
  • Symptoms
  • Diagnosis
  • Treatments

Patients/Loved Ones

  • Chat Virtually
  • In-person Meetings
  • Patient Resources
  • Webinars
About Us
  • Our Story
  • Board and Staff
  • Resources
  • Medical Advisory Board
How to Help
  • Host Fundraisers
  • How to Fundraise
  • Volunteer
  • Spread the Word
Medical Professionals
  • Medical Resources
  • Treatment Trials
  • Grant Opportunities
  • Medical Symposium
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow


This website is for informational purposes only.

Designed by The Egghead. Copyright 2025. All rights Reserved ECD GLOBAL ALLIANCE. A 501(c)(3) organization. EIN# 27-0759192.

ECD Global Alliance Logo
Charity Navigator Four-Star Rating

!

Back to Top

ECD Global Alliance does not provide Medical Advice, Diagnosis or Treatment.

Terms of Use  and  Privacy Policy

h

Join Us



Donate



Care Centers