You can earn up to $25 for participating in this study!
Study Objective: This study will help us better understand possible health problems that people with histiocytic disorders live with. This study will also identify people at risk for these complications in order to help personalize
treatment in the future. Findings from these studies will also help identify those that need to be followed more closely or those that need preventive measures to ensure a healthy life free of complications.
Principal Investigator: Gaurav Goyal, MD, University of Alabama at Birmingham
Contact Information: Research Team [email protected]; 1-866-438-1640
Requested Participant Involvement: If you or your loved one have ever been diagnosed with a histiocytic disorder and speak English, you are eligible for this study. To participate, fill out a survey to inform the ECD Global Alliance team of your consent to have the UAB Research Team connect with you at your preferred contact method, or to learn more about the study: Consent Survey. You will be asked to complete a survey about you or your family member’s health (45-60 minutes).
ClinicalTrials.gov Identifier: N/A