Study Objective: Understand the basic causes of histiocytosis which hopefully will lead to more effective treatments.
Principal Investigator: Carl E. Allen, M.D., Ph.D. and Kenneth McClain, M.D., Ph.D., Texas Children’s Hospital, Houston, TX USA
Contact Information: Phone: 832-822-4212 email: ceallen@txch.org (Allen); Phone: 832-822-4208 email: klmcclai@txch.org (McClain)
Requested Patient Involvement: ECD patients’ surgical biopsies, blood samples, and/or cerebrospinal fluid, along with medical information, is being sought. Patients are encouraged to have their physicians contact Dr. Allen or Dr. McClain prior to any biopsy or medical procedure to allow tissue or fluid samples to be properly preserved and shipped. Contact Dr. Allen or Dr. McClain for more information.