A total of 109 patients, family members, and physicians, from eight countries attended the 2018 Patient & Family Gathering.
Attendees learned about the drug trial process, how to manage multiple medications, how to care for yourself with nutrition and exercise, and more about care management. Please see the event materials below for more on this successful event. Thank you to all participants!
Location: Milan, Italy
All patients and loved ones interested in learning more about ECD and meeting other families are encouraged to attend the following events. The registration fee for the 2-day event includes access to all conference sessions, reception dining, as well as lunch and light refreshments during conference break times. The following meeting times are subject to change.
An educational webinar was held to explain the newest Erdheim-Chester Disease (ECD) consensus document and learn how to use it for care and payer support.
2021 Annual International ECD Medical Symposium Virtual Symposium Thank you for participating in this year’s virtual symposium! Provided below is a listing for this meeting, including the agenda, a printable program, speaker bios, abstracts, and presentation slides. Following the meeting, a recording will be added here and emailed to attendees. 2021 Virtual Event Agenda Medical […]
In this webinar, the doctors at Memorial Sloan Kettering Cancer Center (MSK) help further your understanding of how current eye involvement may affect daily life and how to obtain better outcomes and results.
This webinar, co-hosted by the Histiocytosis Association and Erdheim-Chester Disease Global Alliance focused on ECD and covers endocrine conditions and their management across all histiocytic disorders.
A review of the recently published National Comprehensive Cancer Network (NCCN) Guidelines® for Histiocytosis.
In this review of the latest ECD Consensus Guidelines 2020, the presentation and discussion are tailored for the medical professional community.
Dr. Gaurav Goyal, University of Alabama, Birmingham, led the educational meeting by presenting the topic of Impact on adult patients with LCH and Erdheim-Chester, ongoing treatments, and studies.
The 8th Annual International ECD Medical Symposium was held on November 16, 2021. This virtual experience was organized in hopes that the medical community is provided the opportunity to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease and other histiocytic disorders.
This is the start of the Beyond the Office Visit virtual education series co-hosted with the Histiocytosis Association.
