- This event has passed.
6th Annual International ECD Patient & Family Gathering
May 16, 2018
Location: Orlando, FL
A total of 109 patients, family members, and physicians, from eight countries attended the 2018 Patient & Family Gathering.
Attendees learned about the drug trial process, how to manage multiple medications, how to care for yourself with nutrition and exercise, and more about care management. Please see the event materials below for more on this successful event. Thank you to all participants!
Presentation Slides
Coming soon!
Reception Photos
The following photos were taken during the ECD Patient & Family Gathering Reception with medical professionals and ECD families on November 15, 2018 at the Orlando Health Regional Medical Center. Thank you to all participants for attending and engaging with the community. You can find more photos on Facebook under the tag searches #ECDGA18 or directly in our ECDGA Facebook page.
Patient Meeting Photos
The following photos were taken during the ECD Patient & Family Gathering meeting on November 16, 2018 the Orlando Health – Orlando Regional Medical Center. Thank you to all attendees for participating during the meeting and social times, allowing great support and connections within this community. You can find more photos on Facebook under the tag searches #ECDGA18 or directly in our ECDGA Facebook page. Please join us again on July 12, 2019 in Milan, Italy!
