Grief Community Chats Event 04/19/2025
Date: 19 April, 2025
Time: 01:30 pm to 02:30 pm
12 events found.
Canadian Community Chat
Date: Apr 23, 2025
Time: 12:00 pm
Spanish Community Chat
Date: Apr 26, 2025
Time: 11:00 AM
Peer-to-Peer Community Live Chat with a University of Alabama Medical Student
Date: Apr 29, 2025
Time: 02:00 pm
German Community Chat
Date: May 5, 2025
Time: 12:00 pm
Caregiver Community Chat
Date: May 13, 2025
Time: 08:00 pm
10th Annual ECD Patient & Family Gathering
The Renaissance Barcelona Fira Hotel Plaza Europa, 50-52, L'Hospitalet de Llobregat, Barcelona, Spain +1 moreThe ECD Global Alliance is excited to convene the 10th annual Patient & Family Gathering in Barcelona, Spain. The meeting will be hosted in partnership with Bellvitge Universitari Hospital on 26 May 2025. All patients, family members, friends, and medical professionals are welcome!
10th Annual ECD Medical Symposium
The Renaissance Barcelona Fira Hotel Plaza Europa, 50-52, L'Hospitalet de Llobregat, Barcelona, SpainThe ECD Global Alliance is excited to convene the 10th annual Medical Conference in Barcelona, Spain. The conference will be hosted in partnership with Bellvitge Unversitari Hospital on 26 - 28 May 2025. The ECD Medical Symposium will be held on 27 May 2025. All medical professionals are welcome!
Caregiver Community Chat
Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.
Get Ready to Run, Walk & Roll for Hope! The 2025 Fun Run is Here!
The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2025 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & Roll! From June 16 through July 15, 2025, we invite YOU—patients, caregivers, supporters, and advocates around the world—to join our united movement of strength, visibility, and hope. This fully virtual event is […]
Australian/New Zealand Community Chat
Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.
Peer-to-Peer Community Chat
Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.