Webinars

April 2026
Topic: Living with ECD and Pain: Communicating, Coping, and Finding Support

April 7, 2026
1:00 PM – 2:00 PM CDT
Start date & time in your local time zone.
April 7, 2026 1:00 PM CDT

Speaker: Nicole Hemmenway Chief Executive Officer U.S. Pain Foundation Date: April 7, 2026 Time: 1:00 PM CST Nicole Hemmenway is the Chief Executive Officer of the U.S. Pain Foundation, a […]
June 2026
Topic: Managing ECD Pain & Fatigue

June 25, 2026
1:00 PM – 2:00 PM CDT
Start date & time in your local time zone.
June 25, 2026 1:00 PM CDT

Speaker: Kevin O'Brien RN, MS-CRNP, Nurse Practitioner, Clinical Investigator, Genome Research Institute, National Institutes of Health Date: Thursday, June 25, 2026 Time: 1:00 PM CST Kevin O’Brien is a nurse […]