• ECD, A Global Vision

    Xavier Solanich, MD, PhD is an internal medicine physician at Bellvitge University Hospital (BUH), where he specializes in the treatment of patients with immunological disorders and rare diseases, including histiocytosis.

  • Topic: Managing Diabetes Insipidus (DI)

    Speaker: Pat Gildroy, Ph.D Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living with Arginine […]

  • Topic: Diagnosis and Treatment of Histiocytic Disorders

    Speaker: XinXin Cao, MD Cancer Hospital, Chinese Academy of Medical Sciences, Chief Physician, PhD Supervisor, Deputy Director of Internal Medicine (Langfang Campus) Has long been engaged in clinical and basic […]

  • Topic: Erdheim-Chester Disease (ECD): Decoding diagnosis and treatments

    Speaker: Jerome Razanamahery, MD Dijon University Hospital Date: December 1, 2025 Time: 5:00 PM CET (UTC +1) (Paris Time) Dr. Razanamahery is an expert in internal medicine with a recognized […]

  • Topic: Erdheim-Chester Disease (ECD): A Nephrology Perspective

    Speaker: Mo Atta, MD, MPH Johns Hopkins Hospital Department of Nephrology Date: January 29, 2026 Time: 1:00 PM CST Dr. Mohamed G. Atta is a Professor of Medicine at Johns […]

  • Topic: Managing Pain, Fatigue, & Depression in ECD

    Speaker: Kevin O'Brien RN, MS-CRNP, Nurse Practitioner, Clinical Investigator, Genome Research Institute, National Institutes of Health Date: February 19, 2026 Time: 1:00 PM CST Kevin O’Brien is a nurse practitioner and […]