Get Ready to Run, Walk & Roll for Hope! The 2025 Fun Run is Here!

The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2025 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & Roll! From June 16 through July 15, […]

Looking Ahead: Erdheim-Chester Disease Awareness Week Is Coming Soon

As we move into the final weeks of summer, the Erdheim-Chester Disease Global Alliance (ECDGA) is preparing for one of the most impactful moments of the year—Erdheim-Chester Disease Awareness Week, […]