10th Annual ECD Medical Symposium

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Medical professionals from around the world will gather in Barcelona May 26-28 to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease. We welcome you to join your professional colleagues to share and learn about new findings related to the science of ECD, the diagnostic details, and the care of those living with ECD. This is the only meeting where medical specialists from different fields join together to discuss ECD. We look forward to you joining in the discussions and hope you might find opportunities for collaboration.

Abstract Submissions Abstracts related to ECD and/or adult histiocytosis are being solicited for presentation at the Medical Symposium.  Abstracts are being accepted for oral and/or poster presentation.  This is a great opportunity to share your work and the work of your colleagues.  Please let them know of the opportunity.  Abstracts must be submitted no later than February 24, 2025.

Submit Abstract

Veranstaltungskalender Sonntag, 25. Mai 2025 – Aktivität vor der Sitzung

17:00 – 18:00 Uhr Katholische Messe Alle Interessierten sind vor Beginn der Konferenz zu einer katholischen Messe eingeladen. Pater Charles Balnaves, der Schirmherr des „Patient & Family Gathering“, wird die Messe zelebrieren.

Monday, May 26, 2025 – Patient & Family Gathering.

8 – 8:30 am Registration & Continental Breakfast Genießen Sie gemeinsam mit anderen ein leichtes Frühstück und stimmen Sie sich auf einen informativen Tag voller Hoffnung ein.

8:30 am – 4:30 pm Patient & Family Gathering Verbringen Sie den Tag damit, von medizinischen Fachkräften, Patienten und anderen mehr über ECD zu erfahren.

6 – 8 pm Celebration Evening Verbringen Sie gemeinsam mit Patienten, Angehörigen, Freunden und medizinischem Fachpersonal einen Abend voller Hoffnung und Freude.

Tuesday, May 27, 2025 – Medical Symposium.

8 – 8:30 am Registration & Continental Breakfast Genießen Sie gemeinsam mit anderen ein leichtes Frühstück und stimmen Sie sich auf einen informativen Tag voller Hoffnung ein.

8:30 am – 4:30 pm Medical Symposium Spend the day learning more about ECD from other investigators and clinicians. Discover possible future collaboration opportunities.

6:30 – 8:30 pm Medical Reception Spend time relaxing and meeting with friends.

Wednesday, May 28, 2025 – Care Center Meeting. 8 – 11 am Care Center Meeting Discuss patient care and opportunities to work together to improve patient outcomes. Wer nimmt daran teil? The event is open to the entire ECD community of medical professionals. Please feel free to invite your colleagues.

Hier registrieren

Gastgeber Xavier Solanich, MD, PhD is this year’s host of the ECD Meeting. Dr. Solanich is a medical specialist in internal medicine at the University Hospital of Bellvitge where he has practiced since August 2010. He leads the ECD Referral Care Center at Bellvitge and in addition to ECD patients, he attends to patients with other rare diseases such as Rosai-Dorfman, primary immunodeficiencies, and some hereditary metabolic diseases (especially Gaucher). He sees patients with systemic autoimmune diseases, mainly systemic vasculitis, periaortitis / retroperitoneal fibrosis, and IgG4-related diseases. He is also a consultant to the ophthalmology service for diagnosis and management of patients with uveitis, immune / ischemic optic neuritis, and orbital pseudotumor. Dr. Solanich also works in the Systemic Diseases and Aging group at the Bellvitge Biomedical Research Institute (IDIBELL). He has participated in multiple national and international research projects to study systemic autoimmune diseases, immunodeficiencies, and other rare diseases. He has also participated in several clinical trials as principal investigator or collaborator, obtaining competitive public funding. As a result of his research, he is the author of several articles published in indexed scientific journals.

Tagesordnung

Eine detaillierte Tagesordnung wird vor der Konferenz zur Verfügung stehen. Hotel Für das Treffen für Patienten und Angehörige wurde ein Zimmerkontingent reserviert im – Das Renaissance Barcelona Fira Hotel Plaza Europa, 50-52, L’Hospitalet de Llobregat, Barcelona, Spain, 08902 Please make your reservations using the link below before the hotel deadline. Book your group rate for the ECD Global Alliance Conference Group Room Rate: Single: 240 Euro/night; Double: 260 Euro/night Hotel reservation deadline: April 21, 2025

Reisen Barcelona wird vom Flughafen Josep Tarradellas Barcelona-El Prat angeflogen. Zu den Transportmöglichkeiten zwischen dem Flughafen und dem Hotel gehören:

• Subway. Metro line L9 Sud connects the airport terminals T1 and T2 with the Renaissance Barcelona Fira Hotel. The hotel metro station is Europa Fira. The metro operates daily between 5 am and midnight.
• Privater Transfer. The hotel website states that private transfer is available for 101 Eur (one way) on request.

Hilfe bei Stipendien

We have a limited number of scholarships available if a member of the ECD medical professional community would be unable to attend due to financial reasons. If a scholarship is needed, please contact the ECDGA at [email protected] as early as possible. You will need to include your name, email address, position in the community (clinician, specialist, scientist, student, etc.), and a statement of your need. We will let everyone know what help we can provide by the end of February.

Möglichkeit zur Nominierung für eine Sensibilisierungskampagne

Sie sind herzlich eingeladen, führende Persönlichkeiten aus der ECD-Gemeinschaft zu nominieren – https://ecdga.questionpro.com/2025-ECDGA-Award-Nomination. Reichen Sie eine Nominierung für den Mark-Heaney-Preis ein, um eine medizinische Fachkraft zu würdigen, die Ihrer Meinung nach das Leben von ECD-Patienten verbessert hat, indem sie das Bewusstsein für ECD innerhalb der medizinischen Fachwelt geschärft hat. Nominieren Sie jede Person (Patient, Pflegekraft, medizinische Fachkraft, Freund usw.), die sich ehrenamtlich dafür eingesetzt hat, das Leben aller von ECD Betroffenen zu verbessern. Der Preisträger wird am 26. Mai im Rahmen des ECD-Festabends bekannt gegeben.

Erfahrungen der Teilnehmer

“ECDGA is doing a phenomenal job. Thank you team ECDGA for all that you do to improve patient care.”

– Radiologist

“It is my first ECDGA meeting and I really enjoyed it.”

– Basic Scientist

“This is the first time to attend an ECD meeting. This is a very amazing event which will definitely change my practice and attitude.”

– Hematologist