by Steven May Jr | Jan 22, 2026 | News
We are excited to announce that registration is now open for the 2026 ECD Global Alliance Patient & Family Gathering, taking place in Birmingham, Alabama! Early bird registration is available until February 1, 2026. We encourage you to register early to take...
by Steven May Jr | Jan 22, 2026 | News
Living with Erdheim-Chester Disease (ECD) can be overwhelming. As a rare and complex condition, ECD often leaves patients and caregivers feeling isolated, uncertain, and unsure where to turn. The ECD Global Alliance (ECDGA) support network exists to change that—by...
by Steven May Jr | Jan 22, 2026 | News
We are pleased to announce that registration is now open for the 2026 ECD Global Alliance Medical Symposium in Birmingham, Alabama. This important annual event brings together clinicians, researchers, and medical professionals dedicated to advancing the understanding...
by Steven May Jr | Jan 22, 2026 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to announce the appointment of Jerome Henson as its new Executive Director. Jerome brings with him more than 30 years of leadership experience in education, having served as a teacher, principal, and...
by Steven May Jr | Jan 2, 2026 | News
Created using the Donation Thermometer plugin https://wordpress.org/plugins/donation-thermometer/.$30,000.00Raised $30,000.00 towards the $30,000.00 target.$30,000.00Raised $30,000.00 towards the $30,000.00 target.100.00%In just one week, the ECDGA $30,000 Impact...
by Steven May Jr | Dec 31, 2025 | News
We’re already 30% of the way toward unlocking our $30,000 new Impact Challenge match, and it’s all thanks to supporters like you. $25 becomes $50 $50 becomes $100 Every dollar matters. Every dollar helps us spread awareness, fund research, and support patient...
