by admin | Dec 9, 2025 | News
This weekend, representatives from the Erdheim-Chester Disease Global Alliance (ECDGA) participated in the American Society of Hematology (ASH) Annual Conference in Orlando, Florida—one of the world’s leading gatherings for hematology professionals and rare disease...
by publer | Dec 2, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to announce the addition of Nottingham University Hospitals NHS Trust in Nottingham, United Kingdom, as an officially recognized ECD Referral Care Center. Under the leadership of Dr. Mark Bishton, the...
by admin | Dec 2, 2025 | News
For those living with Erdheim-Chester Disease, every day brings unknowns. But today, our community comes together to show that no one walks this journey alone. Your Giving Tuesday donation will be matched up to $90,000, doubling the love, support, and strength we can...
by Steven May Jr | Nov 25, 2025 | News
https://www.erdheim-chester.org/wp-content/uploads/2025/11/export.mp4 Today, our friend Ziggy the Zebra is stepping up to help raise awareness and support for those living with Erdheim-Chester Disease (ECD) — a rare and challenging condition that needs more...
by publer | Nov 25, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to participate once again in Giving Tuesday and our End of Year Campaign—a time when our community comes together to create hope, connection, and progress for those affected by Erdheim-Chester Disease (ECD)....
by admin | Nov 5, 2025 | News
Last week, ECDGA President Diane Schriner and ECDGA Staff Member Jerome Henson represented the Erdheim-Chester Disease Global Alliance (ECDGA) at the American College of Rheumatology (ACR) Annual Conference, joined by Dr. Mitali Sen, a rheumatologist from the...
